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Muscular Dystrophy News
7 小时
DMD carrier with heart failure has healthy pregnancy: Case study
The case is reported of a young woman who began having DMD symptoms before getting pregnant, allowing her to receive genetic ...
Muscular Dystrophy News
5 小时
Couch shopping awakened me to a focus on my children with DMD
Couch shopping made columnist Betty Vertin discover she was focused on her three children with DMD rather than the rest of her family.
Muscular Dystrophy News
2 天
A walker should help prevent falls, right?
Columnist Robin Stemple knows his walker should help prevent falls, but it didn't work out that way on a simple maneuver to ...
Muscular Dystrophy News
3 天
DMD gene therapy GNT0004 set to enter Phase 3 trial in Europe, US
Based on the positive findings from the Phase 1/2 study, Genethon is planning to launch Phase 3 testing of GNT0004 next year.
Muscular Dystrophy News
4 天
Taking control when living with limb-girdle muscular dystrophy
Columnist Patrick Moeschen, who lives with limb-girdle muscular dystrophy, explains why controlling what he can is so ...
Muscular Dystrophy News
9 天
How I experienced inclusion (and didn’t) during my education
Columnist Shalom Lim tells an international conference about his experiences with inclusion during his education in Singapore ...
Muscular Dystrophy News
8 天
Regenxbio starts pivotal trial testing DMD gene therapy RGX-202
Regenxbio hopes to use the study's results to ask the U.S. Food and Drug Administration to grant accelerated approval to the ...
Muscular Dystrophy News
17 天
Sarepta stops development of exon 51-skipping therapy for DMD
Sarepta has stopped developing SRP-5051, its exon 51-skipping therapy for Duchenne MD, due to long-term safety concerns and ...
Muscular Dystrophy News
15 天
FDA OKs trial to test gene therapy candidate in LGMD children
The FDA has given the green light to a clinical trial testing ATA-200, a gene therapy for limb-girdle muscular dystrophy ...
Muscular Dystrophy News
7 天
Changes this year helped me learn my limitations as a caregiver
As a caregiver for three sons with DMD, columnist Betty Vertin clung to her many responsibilities. This year she's learned to let go a bit.
Muscular Dystrophy News
19 天
Party of 9 — Betty Vertin
Betty Vertin is a mother and writer living in rural Hastings, Nebraska, with her husband and seven children. Betty is a caregiver to three sons, Max, Rowen, and Charlie. Her oldest was diagnosed with ...
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